Today has been a really good day!
I was so tired getting up this morning, it made me think it was going to be a bad day, however I was quite excited that it was the day of my appointment.
My dad was late picking me up to take me to the hospital, which meant I was late getting to my appointment. I was FUMING!
I saw Mr Fayle. It was so nice to put a name to a face! He really is a lovely man, he made me laugh, not sure whether it was intentional but he did anyhow. It was the first time that I could say 'I have Endometriosis', and smile. I wouldn't say i'm happy about having Endo, I don't think I ever will be but I don't fill up inside anymore.
He asked what I would like to do and I told him I want to carry on with no treatment to relieve the side effects. I have Co-Codamol and Tramadol for the pain, I can manage with them for now. It's when they stop working I need to be treated.
He said that Tramadol is very much a drug that medics aren't sure whether it should be controlled or not. If it turns out to be controlled then I will need to have it administered when I need it. I have had Tramadol for a while now (months) and I have only needed it once. I can usually muddle through on Co-Codamol. He says while I have the Tramadol tablets, should I need to take one then I need to call him and if its at an unsociable hour then I need to call A&E explaining I have Endometriosis and have needed to take Tramadol and they will decide whether I need to be seen. For what I'm not quite sure.
He then said that he would not like a young member of his family to be on Co-Codamol on a monthly basis and doesn't understand why he should be happy about his patients being in that position, however for now, he will leave me on it as I seem to be OK with it and after only just coming to terms with having Endometriosis he doesn't want to make changes yet that i'm not comfortable with.
I was asked how I felt about having Endometriosis. I was honest and said that at first it felt like a big slap in the face. Mr Fayle was very empathetic. He advised that telling young people, especially those under 25 that they have it is one of the parts of his job he hates the most. He asked if I'd told anyone and when I said apart from parents, best friend, boyfriend, auntie and boss (all people im close to or need to know) then no. We live in a world where everyone feels the right to know everything.
The truth is though - Endometriosis is NOT something to be ashamed of, it will scare people, but if they can't handle the answer, they shouldn't ask the question.
My care is in his hands, but my appointment frequency is in mine (within reason) I just have to call when I want/think I need another appointment. When I go onto have a child I will need to have regular appointments with him during pregnancy and he will need to be there when I go into labour.
I have felt so much calmer since my appointment.
All in all a good day!
xoxo
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